Journal of Breast Cancer Survival

Journal of Breast Cancer Survival

Journal of Breast Cancer Survival – Data Archiving Permissions

Open Access & Peer-Reviewed

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Data Archiving Permissions

Transparent data practices support reproducibility and safe translation into survivorship care.

Provide clear data availability statements and access conditions.

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190+ Countries
100% Peer Reviewed
Peer Reviewed Expert Evaluation
Open Access Free to Read
DOI Assigned Permanent Citation
Indexed Discoverable
Archived Long term Preserved

Responsible Data Sharing

Data sharing strengthens reproducibility and supports responsible application of survivorship findings.

JBCS encourages authors to use repositories that provide persistent identifiers, stable access, and clear reuse terms.

When data cannot be shared, access conditions should be transparent and ethically justified.

Reproducibility

Access to data improves verification

Ethics First

Privacy protections remain essential

Clear Documentation

Data dictionaries support reuse

Data Availability Statements

All submissions require a data availability statement describing where data are stored, how they can be accessed, or why access is restricted.

  • Public repositories with persistent identifiers
  • Controlled access repositories for sensitive clinical data
  • Data available from the corresponding author on reasonable request
  • Data included within the article or supplementary files

Statements should specify access conditions, embargo periods, and any data use agreements.

Repository Guidance

Select repositories that provide stable access, metadata quality, and clear reuse terms.

General Repositories

Unstable links hinder reuse
Use Zenodo, Figshare, Dryad, or OSF

Clinical Data

Privacy limits access
Use controlled access repositories

Institutional Repositories

Metadata varies by institution
Provide persistent identifiers and clear metadata

Code Repositories

Untracked scripts reduce reproducibility
Archive code with version details

Privacy and Permissions

Remove personal identifiers and confirm consent for data sharing. Sensitive datasets should use controlled access with clear governance.

If embargo periods apply, state the timeline and access conditions in the data availability statement.

Data Types and Formats

Survivorship studies often include mixed data types such as clinical assessments, patient reported outcomes, imaging summaries, and qualitative interviews.

Organize files with clear naming conventions and consistent units to support reuse.

Documentation and File Formats

Provide a data dictionary that defines variables, coding, and missing value conventions. Include readme files that describe file structure and software requirements.

Use open and non proprietary formats when possible, such as CSV for tables and TXT or PDF for documentation.

Access Levels and Reuse

Define access levels clearly, including open, controlled, and restricted access.

For sensitive datasets, describe application processes and oversight that protect participant privacy.

Citing Data

Cite datasets in the reference list using persistent identifiers, repository names, and version details.

Clear data citation supports attribution and encourages responsible reuse.

Sensitive Data Handling

For sensitive clinical or community data, document anonymization steps and ethical approvals for sharing.

Controlled access repositories should include governance procedures to protect participants.

Embargo and Restricted Access

When data are sensitive or linked to ongoing clinical programs, authors may request embargo periods. Provide a clear end date and rationale.

For controlled access datasets, describe the application process, review timeline, and data use agreements.

Submission Checklist

  • Data availability statement with repository links
  • De identification and consent confirmation
  • Data dictionary and readme documentation
  • Code and workflow files with version details
  • Access conditions and contact details if restricted

Clear reuse guidance supports responsible secondary analysis and attribution.

Retention and Versioning

Maintain archived datasets for long term access and document any version updates.

Preservation practices support replication studies and long term evaluation of survivorship care.

Access Requests

If data are available upon request, provide a clear contact method and expected response timeline.

Requests should be evaluated consistently and without unreasonable barriers.

Controlled Access Review

For controlled access datasets, describe review criteria and expected timelines for approval.

Clear governance supports participant privacy and responsible reuse.

Consistent review processes build trust with data contributors.

Transparency helps reviewers evaluate compliance quickly.

Benefits of Sharing

Responsible data sharing supports secondary analyses, meta studies, and improved care guidelines.

Clear documentation increases trust and strengthens the impact of survivorship evidence.

Shared datasets can inform future survivorship trials and programs.

Reusable data strengthen evidence synthesis efforts.

Clear files speed review.

Data Sharing Summary

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Provide clear access conditions

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Use persistent repository identifiers

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Document variables and file structure

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Protect participant privacy

Consistent data practices improve the credibility of survivorship evidence and support future guideline updates.

Prepare a Data Ready Submission

Responsible data sharing strengthens trust and improves survivorship outcomes.